Idiopathic Intracranial Hypertension - What You Need to Know (2024)

Medically reviewed by Drugs.com. Last updated on Jul 7, 2024.

  • Care notes
  • Aftercare
  • Ambulatory
  • Discharge
  • Inpatient
  • Español

What is idiopathic intracranial hypertension (IIH)?

IIH is a condition that causes the pressure inside your skull to be higher than normal for no known reason. IIH can seem like a brain tumor, but no tumor is found.

What causes IIH?

The cause may not be known. It may be caused by an increased amount of cerebrospinal fluid (CSF) in your skull. CSF is a clear fluid that surrounds the brain and spinal cord and protects them from injury. IIH may happen when your body makes too much CSF or does not absorb it correctly.

What increases my risk for IIH?

  • Being female and of childbearing age
  • Obesity
  • Too much vitamin A or tyramine
  • Certain medicines, such as steroids, tetracycline, or birth control pills
  • Medical conditions, such as hypertension or sleep apnea

What are the signs and symptoms of IIH?

  • Headache behind both eyes that is worse in the morning and with eye movement or straining
  • Nausea, vomiting, or dizziness
  • Pulsing or ringing in your ears
  • Temporary blind spots in one or both eyes
  • Blurred or double vision or loss of vision
  • Trouble seeing with your peripheral vision (tunnel vision)

How is IIH diagnosed?

Your healthcare provider will ask about your health history and your symptoms. You may need any of the following tests:

  • An eye exam is used to check for vision problems that may be a sign of IIH. Your healthcare provider will check your vision and examine your eyes. Your provider may dilate the pupil and use a microscope with a strong light to look into your eyes. A dye may be used to help blood vessels in your eyes show up better in pictures.

    Idiopathic Intracranial Hypertension - What You Need to Know (1)

  • A neurological exam is used to check how your pupils react to light. Healthcare providers may check your memory, your hand grasp, and your balance.
  • CT or MRI pictures of your head may show fluid buildup and other problems. You may be given contrast liquid to help problems show up better in the pictures. Tell the healthcare provider if you have ever had an allergic reaction to contrast liquid. Do not enter the MRI room with anything metal. The MRI machine uses a powerful magnet. Metal can cause serious injury from the magnet. Tell the healthcare provider if you have any metal in or on your body.
  • A lumbar puncture is a procedure to check the pressure inside your skull. A needle is inserted in your back and into the spinal canal. CSF may be collected and sent to a lab for tests. Healthcare providers may also drain CSF to relieve pressure and ease your headache.

    Idiopathic Intracranial Hypertension - What You Need to Know (2)

How is IIH treated?

IIH may go away on its own. You may need any of the following if your symptoms continue or get worse:

  • Medicines may be given to control migraines or decrease the amount of CSF you produce. This will help relieve pressure in your skull. You may need medicines to decrease extra fluid that collects in your body. You may also need pain medicine. Your healthcare provider may prescribe pain medicine or recommend an over-the-counter medicine such as an NSAID or acetaminophen.
  • Surgery may be used to make a small opening in the sheath (cover) around the optic nerve. This allows extra CSF to drain and relieve eye pressure. Your healthcare provider may also use surgery to place a shunt (passageway) in your brain or spinal cord to drain extra CSF into another area of the body. This helps relieve pressure in your skull.

    Idiopathic Intracranial Hypertension - What You Need to Know (3)

Treatment options

The following list of medications are related to or used in the treatment of this condition.

  • acetazolamide

What can I do to manage IIH?

  • Maintain a healthy weight. Ask your healthcare provider what a healthy weight is for you. Ask your provider to help you create a weight loss plan, if needed.
  • Eat a variety of healthy foods. You may need to limit the amount of fats and salt you eat. You may also need to limit foods rich in vitamin A and tyramine. Foods rich in vitamin A include beef liver, sweet potatoes, carrots, tomatoes, and leafy greens. Food and drinks that are high in tyramine include cheese, pepperoni, salami, beer, and wine. Ask if you need to be on a special diet.

    Idiopathic Intracranial Hypertension - What You Need to Know (4)

  • Drink liquids as directed. Ask your healthcare provider how much liquid to drink each day and which liquids are best for you.

Call your local emergency number (911 in the US), or have someone call if:

  • You suddenly cannot see.
  • You have sudden neck pain or cannot move your arms or legs.
  • You have sudden trouble breathing.
  • You are confused or cannot think clearly.

When should I seek immediate care?

  • You have a severe headache.
  • You have a seizure.

When should I call my doctor?

  • You have a fever.
  • Your headache gets worse or does not go away with treatment.
  • Your vision loss does not improve with treatment.
  • You have questions or concerns about your condition or care.

Care Agreement

You have the right to help plan your care. Learn about your health condition and how it may be treated. Discuss treatment options with your healthcare providers to decide what care you want to receive. You always have the right to refuse treatment. The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.

© Copyright Merative 2024 Information is for End User's use only and may not be sold, redistributed or otherwise used for commercial purposes.

Learn more about Idiopathic Intracranial Hypertension

Treatment options

  • Medications for Pseudotumor Cerebri

Medicine.com guides (external)

Further information

Always consult your healthcare provider to ensure the information displayed on this page applies to your personal circ*mstances.

Medical Disclaimer

Idiopathic Intracranial Hypertension - What You Need to Know (2024)

FAQs

Idiopathic Intracranial Hypertension - What You Need to Know? ›

IIH happens when too much cerebrospinal fluid (CSF) — the fluid around the brain and spinal cord — builds up in your skull. This puts extra pressure on your brain and on the nerve in the back of your eye, called the optic nerve. If you notice changes in your vision, talk to your eye doctor.

What do I need to know about IIH? ›

Idiopathic intracranial hypertension (IIH) is increased pressure around your brain. It occurs when cerebrospinal fluid (CSF), the liquid that cushions your spinal cord and brain, builds up in your skull. Pressure builds up in your brain and on your optic nerve, the nerve at the back of your eye that helps you see.

What are the red flags for idiopathic intracranial hypertension? ›

Immediate action required: Call 999 or go to A&E if you have any of these symptoms and: they've come on quickly, such as a sudden severe headache, change in your vision, confusion or weakness. you've recently had a head injury. you have a high temperature, or you feel generally unwell.

What is the fastest way to decrease intracranial pressure? ›

  1. Decompressive Craniectomy (DC) DC involves removal of a portion of the skull vault resulting in immediate decrease of the ICP. ...
  2. Hyperventilation. ...
  3. Antiseizure Therapy. ...
  4. Therapeutic Hypothermia.

What can make IIH worse? ›

These headaches are often worse when lying down or in the morning. Any movement that increases pressure in the abdomen (like coughing, bearing down, or bending over) that makes the headache worse.

Does having IIH qualify for disability? ›

Yes, there is disability benefits available for people with Intracranial hypertension. Intracranial hypertension, also known as pseudotumor cerebri, is a rare condition related to high fluid pressure in the brain.

What causes IIH flare ups? ›

Acute intracranial hypertension happens suddenly, usually because of an accident or stroke. Chronic intracranial hypertension develops over time, usually because of a health problem like a blood clot or brain tumor, or from taking certain medicines.

What are 3 cardinal signs of raised intracranial pressure? ›

Clinical suspicion for intracranial hypertension should be raised if a patient presents with the following signs and symptoms: headaches, vomiting, and altered mental status varying from drowsiness to coma.

What foods should you avoid with intracranial hypertension? ›

Patients should also generally avoid foods that are high in vitamin A or tyramine. You may need to limit the consumption of certain vegetables like leafy greens, carrots, tomatoes, and sweet potatoes. Preserved and smoked foods like pepperoni, pickles, aged cheese, salami, beer, and wine should be avoided.

Is IIH classed as a disability? ›

This leaflet is designed to help you understand the different benefits that people with IIH may be eligible for. All disability benefits are based on how each individual is affected by illness and not on the illness itself.

What worsens intracranial pressure? ›

Increased ICP can result from bleeding in the brain, a tumor, stroke, aneurysm, high blood pressure, or brain infection.

What medications should I avoid with IIH? ›

Medicines known to be associated with IIH include1-4:
  • antibiotics including tetracyclines (eg, minocycline, doxycycline), naldixic acid and nitrofurantoin.
  • steroids (on withdrawal)
  • contraceptives.
  • vitamin A derivatives such as isotretinoin.
  • indomethacin or ketoprofen in patients with Bartter's syndrome.
  • amiodarone.
Mar 3, 2016

What is the immediate relief for IIH? ›

Symptom Relief
  • Staying hydrated. Water is essential to the body, especially the brain. ...
  • Get plenty of sleep. ...
  • Limit or eliminate alcohol use. ...
  • Avoid exposure to conditions that trigger a headache. ...
  • Over-the-counter medication. ...
  • Caffeine.

What autoimmune causes IIH? ›

Disorders or systemic conditions that have been associated with IIH include anemia, hormonal dysfunction, obstructive sleep apnea, Down's syndrome, systemic lupus erythematosus, and Sjogren's syndrome. Systemic lupus erythematosus (SLE) is an autoimmune disorder that can affect many organs of the body.

What is the new treatment for IIH? ›

Phase two trial first study to show rapid and significant reduction in pressure in the brain and monthly headaches. Summary: Patients with 'blinding' headaches known as Idiopathic Intercranial Hypertension (IIH) could be treated with a GLP-1RA peptide used for type 2 diabetes, a new phase 2 trial has found.

What is life expectancy with IIH? ›

The average age at death was 46 years (range 20–95 years).

How do you deal with IIH? ›

How is idiopathic intracranial hypertension treated?
  1. Losing weight, if needed.
  2. Limiting fluids or salt in the diet.
  3. Surgically putting a special tube (shunt) in the brain to drain fluid and ease pressure.
  4. Having a spinal tap done to remove fluid and reduce pressure.
  5. Taking medicines, such as water pills (diuretics).

Top Articles
Latest Posts
Article information

Author: Madonna Wisozk

Last Updated:

Views: 6022

Rating: 4.8 / 5 (68 voted)

Reviews: 83% of readers found this page helpful

Author information

Name: Madonna Wisozk

Birthday: 2001-02-23

Address: 656 Gerhold Summit, Sidneyberg, FL 78179-2512

Phone: +6742282696652

Job: Customer Banking Liaison

Hobby: Flower arranging, Yo-yoing, Tai chi, Rowing, Macrame, Urban exploration, Knife making

Introduction: My name is Madonna Wisozk, I am a attractive, healthy, thoughtful, faithful, open, vivacious, zany person who loves writing and wants to share my knowledge and understanding with you.